Information on UK and other international myotonic dystrophy organizations can be accessed via the links below.
- Myotonic Dystrophy Foundation
- Myotonic Dystrophy Support Group
- French Muscular Dystrophy Association (AFM)
- Spanish Federation of Neuromuscular Disorders (ASEM)
- Myotonic Dystrophy Family Registry
- UK Patient Registry for Myotonic Dystrophy
- Muscular Dystrophy UK
- Country-based support information
- Digital resources
- Research updates and information